by the way who is that someone? because a someone is one when he/she matters (lol) __________________________________ #repost @battlingthyroidcancer I’m 99.9% sure if you’ve been given a cancer diagnosis someone has said this to you. “I don’t know how you do it” or “you’re so brave”. It’s as though you’re given the choice - shall I have cancer or not? I don’t have a choice. I have to have the scans, I have to have the blood tests, I have to have the surgeries, I have to have the treatment, I have to put on a brave face, I have to go through all this because what is the alternative? Whilst I do believe we are all “brave”, what is our other choice? Most people don’t see the breakdowns. The tears you cry on your own, the thoughts you have whilst in the MRI scanner or what you’re thinking whilst you’re in the anaesthetic room being put to sleep. I don’t have a choice. I have to tackle it head on and just hope for the best. • • • #thyroid #cancer #thyroidcancer #cancerlife #cancersucks #cancerblog #thyroidcancerblog #thyroidblog #thyroidhealing #thyroidproblems #thyroiditis #getbetter #begoodtoyourself #nevergiveup
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Week 0----Week 1 results. What I've lost: 4 inches What I've gained: A POUND, more energy, a new enjoyment for cardio, and the accomplishment of a routine again. I used to just base my progress off of pounds lost. If this was how I started my journey over a year ago, I probably would've quit and said this program didn't work. And I see other girls doing the same thing when the scale doesn't reflect what they had hoped for. But now I know how progress is SO much more than the number on a scale. I tell all my girls to make sure they take their measurements and pictures at the beginning, and this is why. I SEE a difference in my waist. I NOTICE a difference in my energy. We all need to shift our mindsets away from focusing only on a scale. And I can help you get there while also seeing results! Fill out the link in my bio & we'll chat!
Wiith all the stuff that goes on in your neck every day, it's hard to keep track of everything that goes on in there. Do you know what your thyroid does and why it is important? Come learn about this important part of your body and common health issues seen with it! Bring your questions and experiences to our Thyroid Health 101 program on Tuesday, October 15 at 6:30 p.m. as we discuss ways to improve your health AND stay healthy! . . . #health #healthy #healthyliving #thyroid #neck #thyroidhealth #healtheducation #throat #giraffe #giraffestagram #library #libraries #librarylife #libraryprograms #publiclibrary #publiclibraries #thyroidcancer #thyroidhealing #thyroidproblems #thyroidweightloss #thyroidawareness #westbend #westbendwi
So, I have to take a very high dose of magnesium and hate the pills. Found out my prescription pills solve easily in my coffe 😬😬😬🍁#DontGiveUp #CancerFree #hypocalcemia #hypoparathyroidism #hypothyroidismweightloss #hashimoto #hypothyroidism 💞 #hypoparathyroidism #hypocalcemia #forteo 🦋#Hashimotosucks #thyroidproblems #ThyroidCancer #glutenfree #proteingirl #wls #weightloss #weightlossjourney #plussize #selflove #curvy #loveyourself #selfconfidence #vsginstacrew #nopainnogain #extremeweightloss #wls #bodytransformation #weightlossmexico #curvy #loveyourself #selfconfidence #MyHypothyroidismDiaries #hypothyroidismweightloss #thycan_survivors
So thankful for @marzipen and your creative vision! Everyone has the right to Live. In. Victory! 🙏🏻 #LIVwellness #youmatter #godisgood #calligraphy #talented #jesusfollower #thyroiddisease #thyroidcoach #Octoberbaby #healthcoach #nutritioncoach #thyroidhealing #thyroidcancer #hypothyroidism #hyperthyroidism #hashimotos #octoberfest #autoimmunedisease #chronicillness #adrenalfatigue #chronicfatigue #wellnessblogger #nychealthcoach #OVO #motivation #healthandwellness #healthiswealth #chronicpain #weightloss #thyroidweightloss
Let’s talk about #paweek2019 . For me, it’s been quiet the week. On Monday I was told that my Thyroid Cancer is back (an entire 9 months, almost to the day, from my TT where I was told they got it all). This all happened while I was on my lunch break from my Family Medicine rotation. I sobbed in the car and when it was time to go back in I wiped my face and went in to greet my patients with a smile on my face. So you ask me why PA? Because I want to continue to give excellent care and be a part of a community that has been there for me and fought with me. I want to give back and continue to provide excellent care to patients, even when the news is bad. I’ve been asked many times “How have you gone through a cancer diagnosis and treatment all the while staying in #paschool ?” My answer always has been, I had no choice! I wasn’t going to let anything get in the way of my dreams (and that’s still true!) What’s next for me? I now am becoming a patient at Moffitt Cancer Institute and we are coming up with a plan. I’ll continue to share my #thyroidcancer journey here, to either help others who are thinking that they don’t know how they’re going to do it, or just for those who want to be nosey! Let’s continue this fight!! Soon I will be Karsyn PA-C and thyroid cancer survivor! 💕
Excited to be medically cleared for antelope herd ambushing #bensoncat #cats_of_instagram #seniorcatsrock #seniorcatsofig #seniorcatsofinstagram #seniorpetsofig #seniorpets #thyroidectomy #thyroidcancer #catlife #tabbycatsofinstagram #tabbiesofinstagram #tabbycatsofig #tabbycatworlddomination #catstagram #housetiger #catlove #ilovemycat
#repost @hope_through_hypo __________________ Just a little note that it’s ok not to be ok and we shouldn’t always be so hard on ourselves, we’re only human at the end of the day and somtimes it’s normal not to be ok 💜💜💜🥰🥰🥰🎗🎗🎗#mentalhealthawareness #cancersupport #cancersupportquotes #thyroidcancer #thyroidcancerwarrior #itsoknottobeokay #itsoknottobeok #weareonlyhuman #weareonlyhumansafterall #mrshincheshome #raiseawareness #support #werestrongertogether #cancerresearchuk #thyroiduk #thyroidcancerawarenessmonth #thyroidcancersucks #letsdoit #wevegotthis #wecandothis #takecareofyourself #takecareofyou #mindfulness #mentalhealth
Listen, I don’t know either. And some days I feel like I’m not sure how I am going to make it to the next, but I always do. Your body can do amazing things. Mine has fought cancer twice. #thyroidcancer #bilateralthyroidectomy #adventuresofthyrone #fuckcancer #checkyourneck #thyroiddisease #oneinseven #cancersucks #thyca #gynca #notallcancerispink #vaginalcancer #cancerwarrior #savethehoohas #thewombtangclan
A very different way to spend the weekend. I took part in #RelayForLife2019, an annual fundraising event for cancer patients. I can't hide that it was a lot of fun (go check out my karaoke skills and the best PJ challenge in my highlights!) but also a great moment to think about what does it mean to live and fight cancer everyday. I lost my grandma in 2008 to breast cancer. She was a wonderful woman who tought me the value of empathy. My Nonna was a woman of many talents: from making dresses to baking the most amazing cakes (with layers and all!). She battled with her mental health her whole life but never stopped enjoying the little things. Even at the last stages of chemo, few weeks before she passed away, she prepared the most amazing cake for my sister's birthday. Nothing could stop her from enjoying her family. My favourite childhood memory of her is a hot summer night in southern Italy, when I had fever and couldn't fall asleep so we spent the whole night frying as many cotolette as humanly possibile. She left us only six months after her diagnosis. She didn't like it, but I love that my second name is Carmela. This is for her.
Most Doctors in Australia run a full panel of blood tests but if you’re unsure check your panel includes your Free T4, Free T3, Reverse T3, and thyroid antibodies.
The standard Thyroid Levels doctors use:
TSH: 0.5 to 1.0 mIU / L
FREE T4: 1.3 to 4.2pg / mL
FREE T3: 3.7 to 4.2pg / mL
Reverse T3: FT3 / rT3 Ratio >20
TPO Antibodies <2 IU / mL
Meet Courtney (@lifewiththetans), a #thyroidcancer survivor! 💪🦋 Courtney had surgery for her Papillary Thyroid Cancer last year in July. She was actually pregnant at the time! I think she puts the fight well by saying “Needless to say it’s been rough and I’ve been struggling both mentally and physically this past year, but I’m so grateful to be here with my baby. I’m stronger, my heart is fuller, and I’m going to celebrate and cherish this day forever.” 💙 She’s such an amazing gal— she has a beautiful family and is such a fighter! Please give her some love below.. anyone else diagnosed with thyroid cancer while pregnant?
This past month has slowly evolved to where I'm able to get out a little more often. That has been life changing and enabled me to emerge from a clinging darkness that has loomed over me for more than a year while slowly losing my energy and ability to do simple daily things. . Cancer can suck the fun out of life for a while. I was basically shut in for months before and after surgery, so I am humbled and incredibly grateful for my mobility since surgery in May. I was slowly becoming paralyzed from spinal compression due to a metastatic tumor on my cervical spine (C3) from thyroid cancer and my rockstar neurosurgeon basically saved my life and mobility. . This is the 5th time I've had Thyroid cancer since 2010 and this time has been a beast. I'm still waiting on more tests to determine treatment plan, but I feel peaceful and I certainly can't complain about that. . I'm making peace with having to use a walker/rollator. It has benefitted me greatly so I can walk and rest (rest is often, but it's nice to take a slower pace these days). . Life is no where near back to normal, but I'm learning to adapt and love what it's becoming. These situations break open your soul and force you to grow, and for that, I am incredibly grateful. I am strong. And I am loved. That's all I need to get through anything. . I have wonderful people in my life who have been taking the time to make sure I have juice almost daily. That's my biggest blessing right now. Without it the past month, I wouldn't have had the energy to get out with my partner, friends, and family. . October has always been my favorite month, and it's perfect to finally get out just in time for Fall. . Thank you @xechosilasx for taking such good care of me. I feel so loved and lifted up. We have managed to weather some crazy storms in 3 years. I had no idea we'd have to deal with this, but thank you for being such a great caregiver. I'm excited for this new chapter in life and glad you're on this journey with me. . #metastatic #thyroidcancer #survivor #fighter #cancersucks #cancersurvivor #loveislove #igotthis #beastmode #helen #ga
🦋 Get Support and Answers from the Nation’s Leading Thyroid Community! 🦋 - Join the Butterfly Nation- Download BluMorpho today! 👩💻Post and Chat with other Members today for FREE. 👨🏽🍳 Get access to Recipes written by our Certified Dietitians specifically for thyroid patients. 🕊 Guided Meditation Audio (Coming Soon) 🎙 Butterfly Nation Podcast and Interviews 📚 Plus, check out our ever expanding library on thyroid health and beauty articles! 🕹 And, Play our online game to help improve memory and focus and much more! App Store https://apps.apple.com/us/app/blumorpho/id1472798843 Google Play https://play.google.com/store/apps/details?id=com.bcb4b0607d42.www #thyroidproblems #thyroid #support #thyroidcancer #hypothyroidism #hyperthyroidism #butterflynation #buildfire #app #allthingsthyroid #holistic #holistichealth #autoimmunediseases #followus #women #menshealth
Happy Sunday! How are you enjoying your weekend? . Who actually love Mondays? . . #anxiety #anxietyrelief #anxietyattack #hypothyroidism #hypothyroidism weight loss #thyroidcancer #thyroidproblems #thyroidhealing #thyroidhealth #thyroid #thyroidawareness #thyroiddisease #thyroidweightloss #autoimmunedisease #autoimmuneprotocol #autoimmunepaleo #autoimmunepaleo #guthealth #guthealingfood #kidneys #liver #ovaries #healthyskin #immunesystem #immunebooster #magnesiumdeficiency #irondeficiency #iodine #iodinedeficiency 🤔 #hypothyroidism #hypothyroidismweightloss #thyroidcancer #thyroidproblems #thyroidhealing #thyroidhealth #thyroid #thyroidawareness #thyroiddisease #thyroidweightloss #autoimmunedisease #autoimmuneprotocol #autoimmunepaleo #autoimmunepaleo #guthealth #guthealingfood #kidneys #liver #ovaries #healthyskin #immunesystem
What’s YOUR why? If I can give you one piece of advice for when it comes to motivation on your journey it’s this.. you HAVE to find your why. Your WHY is the thing that will pull you out of bed on the days you don’t want to do anything. It’s strong enough. It means that much. Your WHY should make you cry. Seriously. If you think about it enough, there should be enough emotion there to make you FEEL. For me, it’s these girls. And it goes much deeper than that. If you know me personally you know that I have a complicated relationship with my mom. Close friends know why, they know the story. But it’s a story I hold close and personal because it doesn’t JUST affect me. These girls are my WHY. Being the best mom that I can.. is my why. Being a mom who is always present, at her best as much as possible, and SHOWING them good habits is my why. They’re worth every early rise. Every long day. Every decision. Figure out your why. It won’t make the journey easy. But it’ll make it easier. ❤️
Grey hair is naturally drier than non grey hair. When your hair turns grey it loses its pigmentation and sebaceous glands become less active which can cause dryness. . In addition, when you no longer have the thyroid gland, your hair suffers a lot. Fine hair and hair loss. I started using ringana' s CAPS beauty and hair (link in bio) , which contains the best ingredients that the nature can give to you. . SOD from melons reduces the signs of cellulite and skin impurities, and refine the complexion. Hyaluronic acid promotes beautiful, even-toned skin. Saw palmetto extract supports natural hair growth: manganese and copper contribute to the formation of connective tissue. Zinc from buckwheat germ powder promotes healthy skin, hair and nail structure. Copper from buckwheat germ powder helps to protect cells against oxidative stress. . Do you take food supplement for your skin and hair? . . . #karinringreen #capellibianchi #beautyandhairdiaries #whitehair #over40style #ageistjustanumber #womeninspiration #40plus #thyroidcancer #silver #freethesilver #lovemyhair #silverhairjourney #grombre #gogombre #greyhairtransation #ditchthedye #lifehealthy #grey #foodsupplements
#MyCauseForShoes #endurance1shoe for #purpleribbonawareness. These are #prototypes that are going to #KickStarter soon. Follow us everywhere at @mycauseforshoes #mycause #mycauseshoes #ellendegeneres #foracause #givingback #purpleribbon #violetribbon #purpleribbonawareness #testicularcancer #lupus #lupusawareness #alzheimers #cysticfibrosis #thyroidcancer #chrons #animalabuse
I’m 99.9% sure if you’ve been given a cancer diagnosis someone has said this to you. “I don’t know how you do it” or “you’re so brave”. It’s as though you’re given the choice - shall I have cancer or not? I don’t have a choice. I have to have the scans, I have to have the blood tests, I have to have the surgeries, I have to have the treatment, I have to put on a brave face, I have to go through all this because what is the alternative? Whilst I do believe we are all “brave”, what is our other choice? Most people don’t see the breakdowns. The tears you cry on your own, the thoughts you have whilst in the MRI scanner or what you’re thinking whilst you’re in the anaesthetic room being put to sleep. I don’t have a choice. I have to tackle it head on and just hope for the best. • • • #thyroid #cancer #thyroidcancer #cancerlife #cancersucks #cancerblog #thyroidcancerblog #thyroidblog
Connecting with others who have a similar story is what I love about social media. ⬇️⬇️⬇️⬇️⬇️⬇️⬇️⬇️⬇️⬇️⬇️⬇️⬇️ ⬇️⬇️⬇️⬇️⬇️ Share your story bellow, you never know who you are going to inspire 🦋💪
It's been 2.5 years without needing thyroid medicine after being on it for 12 years due to only having half a thyroid. It's been 4 years without needing migraine medicine and 6 years without needing anxiety medication. (How'd I do it?). . . Want to be back in control of YOUR health and body too? Keep reading.. . . 1. Master your mindset first. You see results with the foods you eat initially but long term what keeps you stuck and on the yo-yo dieting roller coaster is the voice inside your head. I call her Bertha. This makes the journey easier for you once you do the hard work up front! 2. Find someone who's been through what you're going through and better yet, find a community. When you find someone who can guide you out of your hard time, you find a faster route. I did my journey by myself. It was lonely and took me many many years. My clients see results within weeks or months. Having someone to help you refocus and give you the pep talk you're needing goes farther than you think. 3. You must use food as medicine. This is where a #dietitian comes in handy because we are trained on how food affects our bodies. Once I started using food as a tool for my health, my health got better. I was able to come off medications (now meds are necessary at times and shouldn't be stopped without talking to your health professional). . . 4. Make it a lifestyle. You must commit and go all in. When it comes to healing - it's not just a food thing... it's a stress thing, a chemical thing, a sun thing, mindset, a balance thing etc... it's a lifestyle that supports YOUR health. (This is customized for your needs). . . 5. Be patient. This is the part that's the hardest and why it's so important to tackle your mindset at the beginning. Consistency is key... you might not notice anything at all on days 1-30 but day 31 you start noticing something and day 60 you're becoming a different person etc. Be confident in yourself. Trust yourself. Alright girlfriend, Do you want to feel better, have more energy, slimmer, come off meds, feel like yourself again? Drop 👇 the number you're stuck on (1-5) & I have 20% off to join the Health Warriors VIP so u can see results too!
Do you know one of the (many) reasons why I love this guy so much? Because he shows up for EVERYONE in his life. He shows up for me in more ways than I can count. He shows up for our kids no matter what they need... extra love, homework help, life advice, one on one time, school awards or performances... he makes people feel like they matter, like they are loved, like they are doing great at life, even when they are feeling lost or unsure of themselves. This picture is from a friend’s 3 year old birthday party last night... at the very end of the party, when he was tired and we were getting ready to leave. I walked over to tell him we were ready to go and found him reading to the kids. I know he was feeling really drained and ready to be home, but that sweet little 3 year old asked him to read her new Paw Patrol book, and he always shows up, for everyone 💜. I’m trying to do a better job documenting sweet everyday moments. I want our kids to always be able to look back at pictures and have them remind them of how their Dad always made everyone feel loved and important 💜 #iloveyoumattchrien❤️ #howyoutreatpeoplematters #heismyfavorite #belikematt #thyroidcancer #stage4 #stayinthefight #beakindperson #cancerwife #iamtheluckiestwife @boyalloy @carter_chaos_coordinator #mindbodymacros
Just a little reminder and somthing that’s been really coming up with me so much lately is how frustrating it’s been, having to constantly re explain myself to EVERYONE pretty much about how what’s happened to has effected me and why I need support or that extra bit of roc, but it’s always like it’s an issue and it gets very isolating when you just feel that your not being listened to constantly, wether it be a doctor, a consultant, a friend or a family member. Cancers cancer so please be mindful of that 💜💜💜💜💜 to all the people out there fighting a battle no matter what it is, please share what you all are finding the most challenging in your life right now that makes you feel like this - comment below and let’s support each other 🥰💜💜💜💜💜 #cancer #canceriscancer #allcancerisbad #shouldntneedtobesaid #thestruggleisreal #cancerresearchuk #thyroidcancer #thyroidcancerisstillcancer #thyroidless #thyroidlesslife #thyroidissues #reallife #reallifeissues #thyroidproblems #thyroidectomy #thyroidcancer #thyroidawareness #hashimotosthyroiditis #hashimotosdisease #hashimotosthyroiditis #livingwithoutathyroid #livingwithoutathyroidsucks #lifechanged #changedmylife #imnotthesameperson #difficulttimes #wewillgetthere #strongertogether
Just a little note that it’s ok not to be ok and we shouldn’t always be so hard on ourselves, we’re only human at the end of the day and somtimes it’s normal not to be ok 💜💜💜🥰🥰🥰🎗🎗🎗#mentalhealthawareness #cancersupport #cancersupportquotes #thyroidcancer #thyroidcancerwarrior #itsoknottobeokay #itsoknottobeok #weareonlyhuman #weareonlyhumansafterall #mrshincheshome #raiseawareness #support #werestrongertogether #cancerresearchuk #thyroiduk #thyroidcancerawarenessmonth #thyroidcancersucks #letsdoit #wevegotthis #wecandothis #takecareofyourself #takecareofyou #mindfulness #mentalhealth
سلام ودرود بر عزیزان...در ادامه مبحث #سرطان های #تیرویید باید بیان کنم که بهترین و دقیق ترین روش #تشخیص سرطان تیرویید به عنوان یک سرطان درمان پذیر،در حال حاضر #نمونه_برداری با سوزن نازک از گره تیرویید و بررسی توسط یک پاتولوژیست مجرب است. این روش نمونه برداری اخیرا توسط گاید سونوگرافی انجام می شود تا میزان خطا کمتر شود و عارضه ها به حداقل برسد. مطمئن باشید این روش باعث گسترش سرطان نخواهد شد، عارضه مهمی مثل عفونت و خونریزی و...ندارد و فقط کمک می کند هر چه زودتر به تشخیص قطعی برسیم ودرمان را شروع کنیم🌹🌹🌹#دکتر_پوریا_همدانی #فوق_تخصص_غدد_متابولیسم 031_322 18224📞 0933 888 1935📱 #thyroidcancer #papillarythyroidcancer #fine_needle_aspiration #FNA #PTC #FTC #sono_guided_FNA #Endocrinologist #dr_pooria_hamedani
سلام ودرود بر شما عزیزان...در کپشن قبلی گفته شد که شایعترین #سرطان #تیرویید نوع کارسینوم #پاپیلاری هست که خودش انواع مختلف دارد. این کانسر اگر زود #تشخیص داده بشود و درمان مناسب انجام گیرد ،بالای نود وپنج درصد بهبودی دارد. عواملی که باعث ایجاد این سرطان میشه به طور کامل شناخته نشده اما #ژنتیک، #اشعه ایکس،اشعه رادیو اکتیو و شاید بعضی امواج و.....تاثیر داشته باشد.اما مهم این هست که زود تشخیص داده بشود و به طور کامل درمان بشود.براساس یکسری ایتم ها ممکن است پزشک تصمیمات اضافه تری برای درمان بجز جراحی بگیرد مثل ید رادیو اکتیو ، داروها،تزریق الکل و....این سرطان نیاز به شیمی درمانی ندارد و زی نظر پزشک غدد درمان پذیر است🌹🌹🌹#دکتر_پوریا_همدانی #فوق_تخصص_غدد_متابولیسم 031_322 18224📞 0933 888 1935📱 #thyroidcancer #PTC #papillarythyroidcancer #radioactive_iodine #iodine #FNA
Some of the things many aren’t aware of... Cancer can absolutely make us feel unprepared. Sometimes you just want a bath in peace 🙏🏼😳🛀🏻 - - - - - - - - - #cancer #cancersideeffects #qotd #quote #quoteoftheday #inspirstionalquote #cancerquote #PICCline #hickmanline #hodgkinslymphoma #bloodcancer #leukaemia #bowelcancer #livercancer #breastcancer #thyroidcancer #cancerfighter #cancercommunity #cancerhelp #cancerpodcast #itgetseasier #wearehereforyou
Honest share: Last night we argued late into the night. I don’t know where this came from or even what it was about. 🌼 We don’t argue generally, and when we do it is quickly forgotten, but today we are having time apart to collect our thoughts. 🌼 The reason I’m sharing this is to share the way my brain crashed-out afterwards, spiralling into a pit of self-doubt, self-loathing and heartbreak, convinced K was going to leave me. Because of one argument. 🌼 Such a massive emotional overreaction on my part and one I’m struggling to process. Now, I’m 60 miles away and supposedly Christmas shopping but the reality is that I drove here in a state 🌼 No contact lenses, no debit card and no change for the car park. I feel a grief so acute that I feel like we’ve broken up, which we haven’t, and I just want to go home and curl up in K’s arms and cry. 🌼 I’m a stable, calm, open person and always have been so can anyone tell me what’s happening here? #ivf #ivfjourney #ivfaftercancer #ivfcommunity #thyroidhealing #thyroidcancer
I find this to be true for those of us with #hashimotos or #hypothyroidism (or both, like me) Keeping the carbs low, and pitch out processed food all together. Cooking and meal prep can be a pain in the ass for sure. Of course, you have to buy packaged stuff sometimes. (Mostly to keep from falling face first into sugar) Anyone who says they stick to a fairly strict eating plan and never cheat IS A FILTHY LIAR. We can only do our best and start fresh Every. Single. Day.
If you’ve diagnosed with #thyroid ? For treatment, Get Affordable packages over here @ http://bit.ly/2Vlhida Install Meddco Healthcare Android App- http://bit.ly/2mvh8Tp #meddco #healthcare #thyroiditis #thyroidsupport #thyroidissues #hyperthyroid #underactivethyroid #thyroidcancerawareness #hypothyroidism #thyroidawareness #thyroidcancersurvivor #thyroiddiet #thyroidproblems #thyroidcancer #thyroiddisease #thyroidhealing #thyroidhealth #health #thyroidectomy
Welcome back to our song and encouragement time on Alexa Loves AYA's As know I was at @globalvirtualcc last week, but I’m back! You can still see my panel and everything else at GVCC19.com GVCC 19 definitely inspired me, so I have chosen Like We Belong by Gawvi as our song dedication tonight! Do you truly believe that your experience matters? Are you more intimidated to share your story next to more “famous” people in our community? I want to shout something from the rooftops! CELEBRITY HAS NO ROOM IN ADVOCACY OR OUR COMMUNITY. Don’t get mistaken, I am not referring to humble successful advocates or highly visible people who serve, they help so much! Not to mention they would tell you the exact same thing, they started off small too, after all. I love many of these folks. “Celebrity” is something else entirely, and you can usually tell. They don’t want to engage, they just want followers. They want perks, not work. Celebrity has ego, and they don’t want competition. They have friends (who are more like fans) that may even attack up-and-comers because they like the benefits they receive by association. Some groups might even be unwelcoming, forgetting that they were once outcasts before they found their friends. Ignore these people, it’s just noise. I want to assure you that there is not only more than enough room for you, but we need you. We need your experience. Common cancer? So what! You had your own path. Rare disease? Absolutely! Everyone’s experience matters, and that doesn’t come with an asterisk. That means EVERYONE’S! WE BELONG HERE, WE BELONG TOGETHER!! You belong